About me

My research, writing, and speaking have led me to platforms to discuss Higher education for individuals with Down syndrome. My doctorate studies research was what supports students in higher education with Down syndrome reach their academic, social, and independent living goals. We should keep talking about this.

There are 310 Inclusive Postsecondary Education programs. They are looking for individuals with Down syndrome. Our work is to better prepare our families, students, and undergrad education programs on how to best prepare individuals to attend college. Students in higher education with Down syndrome are finding gainful education over 85% of the time upon graduation. This is a powerful statistic and needs to be used to support more individuals with Down syndrome to attend college.

My lived experience began after marrying my College Sweetheart, Jim, we went through years of trying to have a child together. When this was not successful, we began to research adoption options. This brought us to our wonderful and beautiful daughter (and 1st miracle), Cynthia. Much to our surprise, our 2nd miracle followed into our lives, 9 months, 5 days later, named, Jenna.

Jenna was born with Down Syndrome (DS) and needed immediate surgery. Sadly, the surgery was followed by many medical complications. When Jenna was 2 1/2 I joined forces with a woman named, Grace Wadell, and founded the Friends of Trisomy 21 (501c3). In 2001, with other families, we went on to create the Buddy Walk for Down Syndrome for Children’s Hospital of Philadelphia (CHOP). This afforded them the funds to launch the Trisomy 21 Center. The Buddy Walk for Down Syndrome lives on and we are proud that it has raised millions of dollars for research and services for families of those with DS for over 20 years.

 I have my Master’s in Special Education and Doctorate in Educational Leadership, and my research is in Inclusive Postsecondary Education for higher education students with Down syndrome.

Over the years I have been called upon to advocate for both of my children, but more so for Jenna. I have spoken to the School Board, County Commissioners, Congress, and Senate, and done TV & Radio interviews on the importance of Inclusion.

Jenna and I have been invited to do panel programs to address Teachers, Church groups, School Boards, and Families with children with Down Syndrome.

I have lectured on inclusion to groups, teachers, and school classrooms and will continue to do so.

Share your inclusion moments with us to share with all. I welcome your feedback and stories. I am thrilled you have come to hear our story and join the conversation.

If you have questions about having me present or advocate or would like to add your inclusion story to my blog, please email lizannepando@gmail.com